Monday, April 27, 2009

Tube Feeds Continue, But What for the Long-Term ???

So as the days passed and the CUBS wins added up, it had been about 18 days in the hospital and still no real answer as to what the cause of this whole episode could have been or how long it would even last. But the time was nearing where the alternatives were fewer and fewer and a decision was nearing as to what would be the long-term treatment plan.
I remember the day that the decision had to be made like it is just yesterday. Both Dr. Roth and one of his mentors, Dr. Ferreira, had come to see me late in the afternoon. They asked me about how I was feeling and whether I had been tolerating the tube feedings that I was getting. They examined me again. And then the talk started. They thought at this time the best course of treatment would be to under-go a Jujunectomy (a surgery in which they insert a feeding a tube in your abdomen that runs past your stomach and into your Jujunem). My mind was racing with both fears and questions. What did this all mean. How was my life about to change. Why was this happening to me. How soon were we going to do this. Too many things to think about, I break down in tears. My parents and I discuss what this all means that night and begin to brace for the future.
I'd be meeting the surgeon in the next day or 2 to discuss the procedure. Dr. Nagel would be the man performing the surgery with the high recommendation of both Dr's Roth and Ferreira. Life was going to be different, but I'd accept it and make it work...

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