This will be the final posting that will be in the past. Everything after this will be live-current day postings and stories. I am going to briefly explain what has transpired over the last few months since I came home in December. And it pretty much can be summed up in one word, HOSPITALIZATIONS...
These past few months since I came home from the hospital in December I have been in/out of either Northwestern Memorial, Evanston or Highland Park hospitals probably somewhere around 15 times in total. What happens is I will have a few bad days in a row, the vomiting starts all over, and I'm not able to keep up my hydration levels because I can only drink 350ml (about 12oz) of liquids by mouth a day, with 1200ml of Pedialite thru the tube and then the feedings for a total of 10 hours/day. So, after a few bad days I'm so dry and in need of fluids that I am forced to go to the hospital to get hydrated and some nausea and pain relief (sometimes if my tube site had developed some growth). So it was the same routine every time. IV Fluids for 3-4 days and tube feedings re-started the last day, and then go home again. So I'd go home, and sometimes it would be 24, 48 hrs later I'd have to go back, sometimes a week a time would go by without having to go back. To say the least, the last few months have either been me at home on couch doing fluids and feedings, or me in the hospital having nurses take care of me. Roller-coaster ride no question. It's been a week that I was last in the hospital.
Tomorrow I leave for Mayo in Rochester, MN with my parents around 9am. My life will hopefully be changing for the best in the days to come...
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