I've been home a few days now from the Mayo Clinic. I was able to attend the Denny Rosen roast when I got home Saturday nite. I surprised the group by attending, but it felt good to get out for once and know what was going on with my body finally. Some great laughs and then came home and was exhausted. The past few days have been nice to sleep thru the night. I am still experiencing the occasional nausea and some abdominal pain / stomach pain, but have been able to fight thru these episodes with the new medication, Phenergan, and the breathing exercises.
I start the new medication to help re-set the nausea receptor hopefully Thursday. So that treatment can get underway.
Then I decided (with my parents) on the drive home that it was important enough that the 2nd treatment on the muscles below the colon be done properly so I am going to go back to the Mayo Clinic in June sometime for 2 weeks to have that treatment done. It'll be 10 work days, 3 hours a day, and then at least it is still under the supervision of Dr. Camilleri should something not go right, or he needs to change the course of treatment, etc. So, hopefully by the end of June or so the 1st 2 treatments can be completed and then it will just require some time as I begin to advance my diet.
So far I've been able to tolerate a little bit of Mac / Cheese and a little jello. Still doing the tube feedings for about 12 hours a day overnight. Then I try to eat a very small meal each day. Until they totally correct the muscle issue they don't want me to eat heavy things yet. Mostly liquids and softs.
Dairy Bar in Glenview will be hit-up soon enough once Stu Nitzkin is ready to go...
I look forward to starting the treatment process Thursday. It will be hard and require dedication, but can be done and will be done. 2 more days to wait...
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Where's the pic of Nesper?
ReplyDeleteGlad that the meds are starting to help but i hope your 2nd Mayo trip doesn't conflict with the 'bwa outing.
Take care Shark!
So glad to hear that you are on your way towards a full recovery!! Best of luck with the treatment plan Shark.
ReplyDeleteSid
I'm gonna set it up to start hopefully the Monday after the OJ trip. Maybe even just fly from Rhinelander to Rochester for the 2 weeks or come home and fly out 1st thing Monday AM.
ReplyDeleteThanks Sid!